What is Ehlers Danlos Syndrome?
According to Mayo Clinic, Ehlers-Danlos Syndrome (EDS) is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls. Connective tissue is a complex mixture of proteins and other substances that provides strength and elasticity to the underlying structures in your body. People who have Ehlers-Danlos syndrome usually have overly flexible joints and stretchy, fragile skin.
But what does this really mean? EDS affects pretty much everything in your body - as every system is effected by your collagen. So besides joint pain, people with EDS can suffer from autonomic nervous system disorders, gastrointestinal problems, headaches, vision issues, poor circulation, and sleep disorders (among other problems).
Dr Pocinki says, "Often, people who suffer from hypermobility syndrome are called hypochondriacs or lazy because they avoid many everyday activities, because these activities that cause them pain. Most of them don’t look sick and, as a result, friends, colleagues, and even doctors can be unsympathetic. Furthermore, they may spend years unsuccessfully searching for the cause of their chronic pain and other symptoms because many doctors are unfamiliar with hypermobility syndrome and its complex set of symptoms. Such long delays and lack of understanding can lead to frustration (with doctors and with daily life), anger, anxiety, and depression.
The attached paper written by Dr. Pocinki is one of the best I have ever read on the different symptoms associated with Ehlers Danlos Syndrome. I'm hoping you will read it and pass it on to others as well! Let's create awareness for this rare disease!
I hope you'll take time to find out more!